Justin’s Story

Hope for Motor Neurone Disease

Before he was diagnosed, Justin had never even heard of motor neurone disease (MND). But today, he’s hopeful that world-leading research happening at Flinders will lead to a brighter future for people like him. 

WHAT.

MND is a rapidly progressing neurological condition for which there is currently no cure.

At any point in time more than 1,400 Australians are living with MND. Justin is one of them.

WHY.

We’re funding world-leading motor neurone disease research at Flinders to find answers and develop better treatments, and even a cure, for the disease.

HOW.

You can help MND researchers at Flinders to become world leaders in biomarker testing so they can get closer to developing better treatments – and even a cure.

Justin had never even heard of MND. The 39 year old was working full time and along with partner Richard enjoyed a busy social life of dinner parties, friends, travel and growing their collection of Balinese and Indian furniture and décor. 

But when he started experiencing gagging, and in the weeks and months that followed, toothaches, facial swelling, loss of strength and slurring, he began visiting a number of specialists for a gauntlet of different tests.

 After eliminating a stroke as the cause of his symptoms, neurologists diagnosed Justin with MND and Parkinson’s disease. He’s believed to be the only person in South Australia with both conditions. 

“I'd never even heard of motor neurone disease before,” Justin says.

“I’m young, hadn’t had a single health issue before, there was no family history or any other indicators. I was told the average life expectancy is two and a half to three years which was really hard to take.”

 In the months since his diagnosis, Justin has had to adjust to living with the debilitating symptoms of MND. But he takes some comfort in knowing that Flinders Foundation is supporting some of the best minds to help unravel the mysteries of this disease. 

“I know where my fate lies and I know eventually I won't be here. Research is so crucial to find out why it happens to people and work out how to stop it. Even to be able to come up with some better treatments or drugs to stop things like muscle deterioration would make such a difference.”

Read more about the world-leading motor neurone disease research happening at Flinders here.

You can help further research in MND Donate Now